Category Archives: amputee

like me


I realized recently why I’ve been so interested in studying Civil War amputees. To explain, I will use an analogy:

Suppose you were living in a community were everyone had pre-pubescent bodies. Then your body went through puberty, and as a result your body became somewhat more complex than everyone else’s that you knew of. While you had an understanding that puberty wasn’t anything to be ashamed of, and you had a sense that there were other people in the world who had passed through puberty, you were really alone in your experiences and in trying to figure out how to manage your different body. Then, one day in the deep recesses of the library, you come across a book that has descriptions and images of people who have passed through puberty. The changes in their bodies were explained in case study format, and the images were clinical and informative. All of a sudden you realized that your feelings and appearance were not so unusual. You knew that others had experienced the same things. You no longer felt so alone.

Hmmmm…so that’s how I feel when I study the historical medical records of amputees. Their bodies look like mine. Their challenges–even given the better technology nowadays–are remarkably similar to mine.

Is it odd to feel such kinship to men who lived 150 years ago? Whose socioeconomic circumstances are so different from mine? Perhaps. But we’ve all waged enormous battles with our bodies, we have experienced the necessity and horror of loss, as well as the unspeakable pain that accompanies amputation. We’ve each had to address the reality that life goes on, despite the social prejudices that surround our physical difference and despite the fact that we have to ‘accomodate’ ourselves and our surroundings to maintain mobility.

on cats & crutches

John asked (as he was simultaneously petting ellycat and toweling off after his morning shower):
“What if humans had fur like cats all over their bodies?”

Jana: “Then we would have riots and wars over the fact that some of us cats have different-colored fur. Can you imagine how snotty the Siamese-cat humans would be?”

John: “Me, I’d be a hairless cat”

John finished drying off and the conversation drifted off into another direction. But as I was doing dishes this afternoon I thought a bit more about what type of cat I would be…

I think I would be like the B&W three-legged cat that we used to meet on our walks to the garden. That cat was agile and strong. His missing leg caused him to lurch from side-to-side a bit, but never slowed him down.

Being a three-legged catwould mean I would have no need of crutches like the new ones I bought yesterday. For 22 years I’ve used hand-me-down or thrift store crutches. For the first time I bought my own. They are of the space-age folding variety because I’m sick of having to hand-carry my full-size crutches every time I travel. They always cause problems at security checkpoints and they don’t fit in the overhead bin (thus, they usually ride in a posh first class coat closet while I’m relegated to coach). Because I like to travel light (e.g. two weeks in Europe w/one small daypack), the crutches really slow me down…

But no more…(purr, purr)

techno-dependency

Last night we got home super late from Claremont. So late that I quickly brushed my teeth and crawled into bed without plugging in my leg.

You see, each night I plug in my prosthetic leg into a wall socket so the battery in my robotic knee will be all ‘charged up’ for the next day. Charging takes about two hours, so it makes sense to plug in at night–the charging cord is only 2 ft long so it’s unwieldly to get my juice at any other time of day (while I am actually wearing the leg).

So first thing when I got up this morning, I plugged in and headed for the shower. I figured I could get at least half of a charge (about 12 hours-worth) during the time it would take me to get ready for church. I would put my leg on last thing and should have enough juice to make it through the day.

All went as planned. Until I put my leg on. And then I realized that in my haste to get to bed the night before I had neglected to replace the valve that completes the suction on my leg and I couldn’t find it anywhere. The valve is kind of hard to decribe, but basically it’s a small metal disk that screws in on the inside of leg socket. I remove the valve to ‘break’ the suction of my socket when donning or doffing my leg. Without the valve I can’t complete the suction that holds my leg on. So when the valve went missing this morning I realized I was sunk. No valve, no suction. No suction, no wearing the leg. No wearing the leg meant crutches. Ugh.

Fortunately I was able to riffle through a basket of spare parts and found an old leaky valve that fit my current leg. I knew that it would be annoying to wear a leaky valve–meaning that it would’t provide perfect suction and let a slow stream of air leak into the socket (uncomfortable), but I figured it would work well enough until I found my real valve. Which it did–I found the right one, with E’s help, under the sewing table after we returned from church.

So…as I plugged in, searched for a valve, etc this morning, I was stuck by how dependent I am on technology, and how vulnerable I am because of this dependence. Without electricity I can’t use my prosthesis. Without that small metal valve, my leg is no good, either. As much as I feel that I am in control of my life, so much of what I do depends on the metal parts and the microprocessor that facilitate my mobility. As much as I resent the way I must depend on such technology, I am so glad to have it. It allows me to be me.

mom, you probably don’t want to read this one…

This afternoon I tried a neighbor’s scooter (not the stand-on kind, but rather a wanna-be vespa-type scooter).

Poor John had to throw himself between me and a car in the parking lot when I panicked and accelerated. Straight forward. Into the rear end of a very nice pickup truck.

So we learned a few things from this experience:

1) When John is having to make a last-minute decision his first impulse is to throw his body at the problem–not thinking of the danger to himself. What a man!

2) When Jana is nervous (yes, I was visibly shaking), she accelerates. Brakes? WHAT BRAKES!!!!!?????

3) If Jana is going to own a scooter she is probably going to wear out the soles of her left shoe very quickly because of her Fred Flinstone style braking response.

4) I LOVED RIDING THE SCOOTER!

Most of my life is lived at a snail’s pace. I can’t run, jump, cavort or bike very well. I amble. But maybe, soon, I’ll be scooting. Wind whipping through my hair, imagining that I’m in Paris or Shanghai. Baguette, roses, and calico kitty in my back basket. Scarf flying at my neck. Bugs in my teeth because I’m grinning ear-to-ear…..

Note: a part of me is saying, “SCOOTER–what are you thinking??? Do you want to lose your other leg, too?” The other part of me is saying, Geez. it’s not any faster than a bicycle. And think of all the wear and tear you can save on the car…”

cartoon


A bit of political commentary/amputee humor for your friday afternoon….
[Note: I’ve been getting asked lately if I lost my leg in the war. It shocks me to have to field this question, but it speaks to the recent increase in those of us who’ve lost limbs….]

a reply

Part of my reply to this post:
Perhaps the best thing you can do is talk to your kids a lot about physical difference. But don’t perpetuate stereotypes about disability (that the disabled are helpless and abnormal). Have the kids try to imagine how they would do things if they needed to use a wheelchair, or were lacking an arm, or were hearing impaired. Teach them that all members of our world have a right to access public institutions. Have them imagine how we can do better to create a world that can accomodate people of with all types of abilities.

toes II (sans tofu)

Ok, the yucky toe I wrote about in my last message is no longer just a yucky infected toe. It is really a yucky infected BROKEN toe. That’s why it’s been hurting so badly. Du-uh.

This experience has taught me that I just don’t appreciate my toes enough. Daily I praise and give thanks for my knee and ankle, but my toes have gotten short-shrifted. From now on, I will no longer take my toes for granted. I will give them the love and attention that they each deserve. Everyday….As soon as the current swollen and painful and BROKEN toe ceases to make my whole body ache.

leg(s)

Two weeks ago I had new cosmesis, or “skin” put on my artifcial leg. To do so I went to a clinic where I’d never been before to meet with the tech who’d be designing my leg. It isn’t a quick process. I’ve already written a bit about that here.

So I meet with this Tech and we talk about what I like my leg to look like. I point to some problem areas on my current skin (the wrinkly calf, the hole in my ankle, etc). I tell him that I like firmer foam around my thigh, with a softer–more bendable–style at my knee. We discuss different aspects of my lifestyle. Tech spends about 10 min looking at my real leg and taking measurements. He tries not to register shock at my 16″ calf (yes, those muscles are big!). He tells me that he always downsizes the leg a bit from the true size, “to look more shaplely and natural.” Most Techs actually trace my left leg so they can get the shape just right. This Tech, though, says he can do it from just a visual and some measurements. I decide to trust him on this.

Then he goes back into the shop for a few hours and emerges with a “shapely” leg.

Tech’s done a fine job. The leg is smooth and well-shaped. It matches the one on the left nicely. I put it on and he has me walk all around the office and look in all of the full-length mirrors. The receptionist and other techs form a line down the hall and give their opinions. Then I try on various pairs of pants to see if the leg looks right. Tech makes a few adjustments and then sends me on my way. The strong smell of chemical adhesive that exudes from my leg is disconcerting. I roll down the windows in the car on the drive home.

All day long I find myself trying to get used to the new feel. I touch my calf and it is oddly spongy. I put on black stockings and find that I like the way it looks. It’s been a very time long since I wore a short skirt.