Category Archives: body

hole-y

Last weekend a friend invited me to try an acupuncture session with her practitioner.  I’d never been before so I figured I would go, just for the experience of seeing how I liked it (in the spirit of my summer of YES).

It wasn’t until after I got there that I realized…hmmm…I’ve had some rather negative experiences with metal and puncture wounds in the past (if you’ve ever heard the story of the long needles that I used to get in my shoulder for my chemo, you know how much trauma I have associated with such things).  But I knew acupuncture would be nothing like what happened with a rusty metal pole a few years ago or like an IV needle pumping toxins into my body.  So I laid down on the mat and let myself be punctured.  I’d suggested that she put the needles in the spots that would help to relieve the pressure that I’ve been experiencing in my lower back as a result of my prosthetic-fitting issues.  She said the points for that would be in my hands, feet, and ears.

She started by inserting needles into the outsides of my hands.  Then she did my ankle (she skipped the bionic one, which was probably wise–neither of us would’ve wanted to short-circuit any of my robotics).  By that point I was a wee bit tense.  The needles, though narrow, did hurt going in.  It was sort of like that feeling when you’re getting novacaine at the dentist and they say “this’ll just pinch for a second” and then it really pinches.  For more than a second.  Since she could see I was a bit uptight, she then added needles to my forehead “to help me relax.”  It was nice to have her rub my forehead gently (I tend to carry all my stress right between my eyes).  Then she started pinning my ears.

It was when she approached my left ear and asked what had happened there, that I remembered what a mess my body is, with scars everywhere.  I’d forgotten about the reconstructive surgery I’d had on that ear so many years ago–but it does look kind of strange close-up because of a series of skin grafts to the lobe.  Since I’ve had surgery on both of my ears I’m not even sure that they would ‘work’ for acupuncture–they’re both covered in scar tissue and I don’t have much feeling left in them.  But she pinned them anyways, and then left me in a supine position with all of those needles in for about an hour, while some new-agey music played.

As the time wore on, I did feel more and more blissed-out.  But I’m not really sure that it was due to the needles–I think it was more because I was like Gulliver–pinned in so many places that I really couldn’t move without disrupting something.  Lately I haven’t been taking enough opportunities for silence, so I enjoyed having to just lay there for awhile, with nothing on my mind.  That part was just what I needed.  But the needles…I think I could have done without.  A massage would’ve felt much better to me, and I think when I need a bit of an ‘adjustment’ I’d opt for that before I’d do acupuncture again.

I was just a block from my favorite beach for the session, and when I walked outside afterwards the sun was just setting over Catalina island.  I skedaddled over to the sand as fast as I could and was able to walk the length of Big Corona before it was completely dark, the salt water stinging the holes in my ankle.  When I passed my very favorite thinking spot (where I did my catharsis ritual), a long-stemmed yellow rose washed up at my feet (no really, it did–things like that just always seem to happen to me…).  It brought back some sad and happy memories of the flowers my ex left for me near there when he proposed marriage, of bonfires on this beach with my children, of paddling and swimming in the water so many times in recent years.

It was such a mixed-up confluence of past and present–the contours of my body and my landscape harboring the weight of so many stories, and also holding so much promise for the future.

if this is you…

This morning when you went to the prosthetist’s office you were feeling a bit fussy and discouraged. Because for the past six months things just haven’t been right. Either your leg has been too long, or too short, or the knee hasn’t been taking a charge or the socket has been leaving pressure sores. And you feel like every little adjustment just spawns more problems ‘to be taken care of.’  And you are oh-so tired of walking with a “loaner knee” while yours is in the shop.  Ugh.

If this is you, then you unloaded it all when you got to the prosthetist’s.  Venting your various frustrations and concerns about possible changes.  And then you surrendered your leg to be worked on again, to get the loaner knee out & the pylon changed out for a shorter one.  You also suggested some alignment changes–to point your toe out and to bring down the heel a bit.

And then, as you were putting the leg back on, your prosthetist mentioned that your ankle rotator was back.  You’d forgotten that it was even missing.  But when you put your leg back on and stepped down on it, you remembered.  That little bit of give in the ankle feeling so natural and smooth.  And then you walked back and forth and back and forth in the office, to see what felt right and what didn’t.  And then you realized that sometimes when something is missing (a little twist in the ankle, perhaps), you don’t even realize that it’s gone, but you know that something just doesn’t feel right.  And when it’s back, you can’t imagine how you lived for weeks without it.

Fortunately, I’m nearly all put back together now.  Just one more change in store next week and then (fingers crossed), I’ll be back to my normal bionic self again…

short shameful confession #14

Back when I was in high school and had limited mobility due to having recently lost my leg (to cancer), my boyfriends often carried me wherever we were going. It got me there faster than if I were to ambulate myself, and also fed my uber-romantic teen desires to be swept off of my feet by a beau (I will confess that such moments fueled many a Twilight-like fantasy).

But now it’s been years–if not decades–since I’ve gotten a ‘lift’ from anyone (the one exception might be that time a few months ago that a wave was pulling me away from my canoe and a teammate picked me up and carried me to safer waters). I’m rather proud of my ability to get places on my own two feet, so I tend to look back on my years of being ‘carried’ by men as a bit shameful now…

However, a few days ago I got a piggyback ride up the stairs to the second story of my house…and I enjoyed it far more than I imagined that I would. What a sweet feeling it was to trust myself to someone else’s strength for a few moments…

Previous short shameful confessions

it’s the little things…

I got my right leg adjusted to be 1/8 of an inch shorter this afternoon.  All of a sudden, everything is feeling easier–and it’s shocking to me that I haven’t realized  that for about six months that I was walking on a limb that was a wee bit too long.

But what an amazing difference.  I feel so ready to take on the world tonite…one step at a time.  🙂

swimming

This seems the perfect poem to ruminate on as I’m headed out the door for a morning swim (especially that last stanza).  There have been times in my life when swimming was the most important thing I could do–I’m thinking of the night after I learned that my father had terminal cancer.  I swam 100 laps then, despite being 8 months pregnant.  Swimming until I’d lost every ounce of strength left in me.  Because I thought I could swim away the hurt and the reality of what was happening…

And one more thing: I’m looking for a local who’d like to do some ocean swimming with me. If you’re interested, drop me a line.

The Swimming Lesson
by Mary Oliver

Feeling the icy kick, the endless waves
Reaching around my life, I moved my arms
And coughed, and in the end saw land.

Somebody, I suppose,
Remembering the medieval maxim,
had tossed me in,
Had wanted me to learn to swim,

Not knowing that none of us, who ever came back
From that long lonely fall and frenzied rising,
Ever learned anything at all
About swimming, but only
How to put off, one by one,
Dreams and pity, love and grace,–
How to survive in any place.

re-boot

IMG_1800
Last night I noticed that my leg didn’t seem to be charging correctly–the microprocessor in my bionic knee needs to ‘charge’ every 30 hours or so, or it runs out of juice.  The charging cable that I use for the knee has some simple LEDs that indicate whether it’s charging and how much juice is left in the battery.  And last night one of those lights (the one that indicates whether it’s charging) didn’t seem to be working.  But it was late, so I plugged it in and figured that the light was broken and all was ok.

But of course it wasn’t.  When I donned my leg this morning I realized the battery was completely dead.  Ugh.

I have a second charger cord, but it was already packed in one of the moving boxes, and I wasn’t sure which one.  And, it seemed as though the problem might not be the charger but the leg itself.  I started panicking a bit, thinking that I’d gotten some sand in the computery-parts when I went to the beach a few days ago.  And I was already imagining that this uber-busy week was going to get a lot more crazy if I had to get a ‘loaner’ knee and send mine back to the plant for servicing.

But…after about 20 minutes I found the other charger and the microprocessor seems to be taking a charge just fine now (fingers crossed).

Sometimes I resent my reliance on technology–I don’t want to be so physically dependent on cords and batteries and computers.  But I also fought for years to acquire this technology for myself, knowing that this type of knee would give me the mobility that I craved.  Recently I read a Journal entry that I wrote just after I got my first bionic knee.  I was traveling in Paris for the first time and found that navigating the uneven cobblestones was a breeze with the new knee, and I knew that if I had analog parts that I would have probably fallen repeatedly because of the uneven pavement.  I felt so fortunate to have access to the technology that gave me mobility under those circumstances.  And I still do, even if it means that my Monday needs a bit of a ‘re-boot.’

she’s got legs…

A few months ago I was reconsidering my legs.  For a few years I’d gone ‘robotic’–letting my prosthetic leg show rather than wearing a cosmetic covering over it to make it have the same contours as an organic leg.  It was an empowering experience, but also hard sometimes.   I don’t mind being stared at–I’m used to it now, after having had that happen for nearly 30 years.  I don’t mind discussing my disability–I’m used to that, too.  But I do mind when that tends to eclipse everything else that is important and interesting about me.  So I started feeling like it was time for a change (that, and I started wearing knee-high boots, which looked REALLY WEIRD with one skinny leg and one normal-sized one).

As a temporary measure, I put some old cosmesis on my leg to see how it felt and looked.  I showed my kids and their jaws sort of dropped.  They were so used to a Mom with asymmetry–they didn’t seem to like it much.  I mentioned it to some friends, who were supportive, but not really opinionated one way or another about which looked better.  And after a few weeks of using that old cosmesis (which wasn’t actually fitted to this prosthetic leg so it didn’t look quite right around the ankle or knee), I submitted the insurance paperwork to get some nice cosmesis made for this leg.  And, months later, it was approved and I got my new skin about a week ago.

At this point, I’m still not sure which look I prefer.  I see positives and negatives to both.  But I like that I now feel comfortable wearing my leg either way–I experience no shame in showing my robotic innards, and I also enjoy ‘passing’ as a biped and having my tights and boots and slacks hang symmetrically on my lower body.  Perhaps what’s most important is knowing that either works fine for me, and I can change my mind about my ‘look’ at any time without feeling the need to justify or explain it to anyone.

(Pic to the left is me last Halloween with stripey tights and a tutu.  Pic to the right is me today at work (with my skirt hiked up a bit to show the vintage-lace edge of the slip that I’m wearing underneath my sundress)

 

and surrender…

When John told me that he was leaving me, he revealed some pretty ugly things–most of which I won’t write here.  But perhaps out of those the one that surprised me the most, was when he told me that he’d basically checked out of our marriage two years ago when I was ill with that mysterious antibiotic-resistant infection.  He explained that it was just too much for him to endure–caring for me with no certainty that I would ever get well again.

He was so gracious and kind during that entire illness, I never knew that it had been so terrifically difficult for him.  Indeed, I was quite surprised to learn that that was the breaking point.  Perhaps not coincidentally, I’d been thinking myself recently about how difficult it’s been to care for John during his ongoing degenerative issues with his back and hips.  For about four years John’s been nearly-unable to walk more than a few blocks (sometimes not even that far).  When we’ve traveled, we’ve pushed him in wheelchairs at museums and altered our typical on-foot walkabouts to short jaunts to accommodate John’s limited mobility.  For a long time he was unable to even walk through a grocery store because of the severe pain that it caused him. I’d wondered how I would handle life with a spouse who had such a long-term physical limitation, and was hoping that I could do so with as much aplomb as John had done with my various health problems…but I had concerns about keeping it up–his pain made him short-tempered and frustrated. He was so much more difficult to live with than before. He lost his energetic “bounce” (I missed that part of John’s personality quite a lot).

So what I wonder is this….at what point do we throw in the towel on our relationships when things don’t turn out as we expected? And when do we hang in there, even at a high cost to our own autonomy?

Some of my thinking along these lines also has to do with recent encouragement from friends for John and I to reconcile. Part of me wants to fight and hope that we could make our marriage work again (as I have many times before), but I fear that isn’t a choice I even have the liberty to make–John seems quite sure that he’s done with us (and with me). But I wonder, have I given up too easily? Is there something more I could or should do? Or some concession or change that I could make that would make John feel happy again?

Or is it time to wave that white flag and move on, realizing that I just can’t endure it any longer?

Love is fading



Love is fading, originally uploaded by pilgrimgirl.

Well over a year ago, punk rocker Amanda Palmer signed my foot. Now, her “Love, AFP” signature is fading, and I’m debating whether to try to refresh it with a permanent marker or to just let it fade away…

On a not-really-related note, I spent some time at the beach this weekend watching the waves and thinking deep thoughts, my feet buried in wet sand. Times like these I realize just how lucky I am to live in southern California, where I can escape to the ocean nearly any time.

Temptation

I’d been planning to write this post for awhile, and then Chandelle’s recent conversation about meat-eating inspired me to actually sit down and pound it out…

In the late afternoon my Mom would often set some meat on the counter to defrost for that night’s dinner. It was usually some chicken or ground beef. From that she would cook all kinds of typical American dinner foods. When I was little I thought those packages of thawing meat were beautiful and I loved to scrape a line of frost off the top of the package and then suck the crystals off of the tip of my finger. For some reason I was particularly attracted to the valu-paks of ground beef that she would thaw. More than once I snuck nibbles of slick red meat off the corner, thinking that was a special treat. That my Mom had told me pointedly not to eat raw beef made it all that much more sneaky-special. Sort of like licking a bit of frosting off of a cupcake, I suppose.

Of course now I’m amazed that I didn’t get any major intestinal diseases from licking meat packages and ingesting raw ground beef. Ugh.

About 16 years ago I gave meat eating. The impetus was my father’s death. Seeing his body turn from a living breathing thing to a slab of “meat” was one of those life-changing moments. I’d always struggled with death (yes, I cried in bio labs when we had to kill the animals), and this was such a potent reminder to me of our own fragility. Every time I’d start to eat meat I would feel a repulsion–as if I were eating my own flesh. The world felt so violent and cruel that I didn’t need to add my eating habits to the weight of violence that already existed in the universe. Though this is a bit of a tangent, I believe that era of my life is also when my pacifism solidified into something that began to lead my everyday actions, and I also had increasing difficulty with the necessary violence of the Christian atonement. But back to my main story….

About two years ago when I started experimenting with locavore eating, I realized that I could tolerate small amounts of humanely-raised and slaughtered meat. And since then I’ve occasionally indulged in meat if I was having one of those very-anemic days or if I happened upon an eatery where I was comfortable with the source of their meat. It felt good not to be dogmatically vegetarian (having shed my dogmatism about nearly everything else in my life).

So now, due to a variety of health issues, I’ve begun to eat a high-protein low-carb low-fat diet. Nothing as extreme as Atkins, but I’m more than doubling my protein intake. And in doing so I’m eating meat nearly every day. It feels weird to look at a slab of red flesh and cook it into something that I will put in my mouth. Walking by the meat aisle isn’t exactly appetizing to me. But I am enjoying my forays into meat-eating, and the variety of options that are available to me now that weren’t when I vegetarian. And, quite honestly, I’m feeling better physically than I was when I eschewed meat altogether–I suspect this has to do with the roller-coaster effect of blood sugar highs and lows that accompanied my mostly carb-based vegetarian diet.

I continue to have concerns about the meat-packing business and the mostly unethical practices of those who raise American livestock. I’m not shoving those concerns aside, I’m letting them sit with me as I figure this out and experiment with new ways of doing things. I feel sure that many of my vegan and vegetarian readers will feel offended by my choice to eat meat, and I’d love to hear your side of this–I’m still weighing the evidence and considering the various possibilities. And for those of you who eat meat, I’d also love to learn about how you approach this decision.

And, for the record, I’m no longer tempted to nibble on raw ground beef. Though sushi does give me a bit of the transgressive raw-meat rush that I remember as a child.